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A Lord Chancellor's Department Consultation Paper

Making Decisions: Helping People who have Difficulty Deciding for Themselves

April 2002



Introduction

This paper sets out for consultation a pack of leaflets which are intended to provide help and guidance for adults who, due to mental incapacity, need support to make decisions and also for those involved in caring for them. The consultation consists of a pack of six guidance leaflets which are each aimed at a specific audience namely relatives and carers, health care professionals, social care professionals, legal practitioners, people with learning difficulties and adults who wish to plan for future incapacity in England and Wales. There is also a covering statement, which acts as a preface to each leaflet, and which sets out the general principles regarding decision-making on behalf of mentally incapacitated adults and the background to the formation of this guidance.

This consultation is being conducted in line with the Code of Practice on Written Consultation issued by the Cabinet Office. It falls within the scope of the Code. The Code criteria has been followed. An initial impact assessment indicates that the publication of this guidance is unlikely to lead to additional costs or savings for businesses, charities or the voluntary sector.

Copies of the consultation paper are being sent to the following organisations to which we are very grateful for their help in taking this work forward:

Amongst others



How to respond

Please send your response by 9 July 2002 to:

Virginia Gray
Lord Chancellor's Department
Family Policy Division 1
3rd floor
Southside
105 Victoria Street
London SW1E 6QT

Tel: 020-7210 0751
Fax: 020-7210 1265
Email: Virginia Gray

Representative groups are asked to give a summary of the people and organisations they represent when they respond.

The Department may wish to publish responses to this consultation document in due course. Please ensure your response is marked clearly if you wish your response or name to be kept confidential. Confidential responses will be included in any statistical summary of numbers of comments received and views expressed.

Paper copies of this consultation paper can be obtained from the above address or by phoning 020-7210 0751.



Summary of issues for consultation

We would welcome any general comments that respondents may have on particular leaflets or the Guidance as a whole.

However, views are particularly sought on the following:

Questions:

  1. Would the information contained in the Guidance be useful to you in your particular role either as a carer, health professional, social care professional, legal practitioner or someone who may wish to plan for a loss of future mental capacity?

  2. Are there any other issues which you think should be included in the Guidance?

  3. Is the Guidance easy to read and understand?

  4. Is the Guidance set out in a way that makes it easy to use?

  5. Are the sources of further information helpful?

  6. Do you have any views on how the Guidance leaflets could best be distributed so that it reaches relevant people?


If you have a learning disability, we would particularly like to know what you think about Leaflet 5 such as:

Questions:

  1. Would the leaflet help you to make your own decisions?

  2. Is it easy to understand?

  3. Is there anything else which we should have put in the leaflet?



Covering Statement for all leaflets

This leaflet is one of a series intended to provide help and guidance, both for adults who need support to make decisions. This may be because of a learning difficulty, brain injury, dementia, mental health problem or any other illness or disability which affects their capacity to make their own decisions, and also for those involved in caring for them.

Other leaflets in this series include:

  1. A guide for relatives and carers

  2. A guide for health care professionals

  3. A guide for social care professionals

  4. A guide for legal practitioners

  5. A guide for people with learning difficulties

  6. A guide for people wishing to plan for future incapacity

The Government has accepted the need for changes in the law to improve and clarify the decision making process for people unable to make decisions for themselves because of problems of mental capacity. Making Decisions (published in October 1999) sets out the Government's proposals for law reform. But new legislation takes time.

In the meantime, these guides aim to make the best use of the current law and give examples of good practice, while setting the scene for new legislation. It is intended that the guidance given here will evolve over time, to reflect future changes in law and policy affecting people who lack capacity.

The guidance in this series is informed by the following key principles:

Examples of how these principles can be applied in practice are set out in the leaflets. It is not possible to cover everything, so initial guidance is given with cross-references to more detailed sources of help and advice.



Consultation Co-ordinator

If you have any complaints or comments about the consultation process, you should contact the Lord Chancellor's Department's consultation co-ordinator, Peter Jacob, on 020-7210 8516 or e-mail him at Peter Jacob. Alternatively, you may wish to write to the address below.

Peter Jacob
Consultation Co-ordinator,
Room 8.23
Lord Chancellor's Department
Selborne House
54-60 Victoria Street
London SW1E 6QW



General principles of consultation

The criteria in the Code of Practice on Written Consultation issued by the Cabinet Office is as follows:

  1. Timing of consultation should be built into the planning process for a policy or service from the start, so that it has the best prospect of improving the proposals concerned, and so that sufficient time is left for it at each stage.

  2. It should be clear who is being consulted, about what questions, in what timescale and for what purpose.

  3. A consultation document should be as simple and concise as possible. It should include a summary, in two pages at most, of the main questions it seeks views on. It should make it as easy as possible for readers to respond, make contact or complain.

  4. Documents should be made widely available, with the fullest use of electronic means (though not to the exclusion of others), and effectively drawn to the attention of all interested groups and individuals.

  5. Sufficient time should be allowed for considered responses from all groups with an interest. Twelve weeks should be the standard minimum period for a consultation.

  6. Responses should be carefully and open-mindedly analysed, and the results made widely available, with an account of the views expressed, and reasons for decisions finally taken.

  7. Departments should monitor and evaluate consultations, designating a consultation co-ordinator who will ensure the lessons are disseminated.


 


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